Encore -- d:(Quality of life -- Canada)

Additional actions:

A Quasi-Experimental Study Investigating the Impact of a Lifestyle Redesign Program on the Well-Being of Korean University Students.

An SL;Kim GR

Academic Journal | Publisher: Hindawi in collaboration with John Wiley & Sons, Inc Country of Publication: England NLM ID: 9433361 Publication Model: eCollection Cited Medium: Internet ISSN: 1557-0703 (Electronic) Linking ISSN: 09667903 NLM ISO Abbreviation: Occup Ther Int Subsets: MEDLINE Please log in to see more details

Background: Korean university students (KUS) face numerous challenges that can jeopard... more

A Quasi-Experimental Study Investigating the Impact of a Lifestyle Redesign Program on the Well-Being of Korean University Students.

Publisher: Hindawi in collaboration with John Wiley & Sons, Inc Country of Publication: England NLM ID: 9433361 Publication Model: eCollection Cited Medium: Internet ISSN: 1557-0703 (Electronic) Linking ISSN: 09667903 NLM ISO Abbreviation: Occup Ther Int Subsets: MEDLINE

Background: Korean university students (KUS) face numerous challenges that can jeopardize their well-being, including academic stress, peer pressure, irregular sleep patterns, unhealthy eating habits, lack of physical exercise, and difficulties in time management, resulting in unhealthy habits and fluctuations in lifestyle. Consequently, there is a growing need for interventions tailored to this population.
Aim: This study explored the effects of a Lifestyle Redesign (LR) intervention on Korean university students' well-being including occupational participation, satisfaction, perceived stress levels, and quality of life.
Method: A quasi-experimental study with 33 KUS (17 intervention, 16 control) assessed the effects of a 10-week LR intervention on well-being of the students. Pre- and postintervention changes were measured using Canadian Occupational Performance Measure (COPM), Stress Response Inventory (SRI), and World Health Organization Quality of Life Scale Abbreviated Version (WHOQOL-BREF). The intervention, delivered by trained OTs, comprised of individual and group sessions.
Results: Statistically significant improvement was observed in occupational performance. While statistical significance was not consistently achieved in the rest of other areas, the LR group displayed positive trends. The LR group exhibited higher COPM satisfaction scores, lower SRI scores (indicating reduced stress), and elevated WHOQOL-BREF scores compared to the control group.
Conclusion: This study contributes to the understanding of the importance of addressing lifestyle changes and habits in the well-being of university students, especially in the context of academic stress and peer pressure. Future research with larger, more diverse samples and extended intervention periods may offer further insights into the benefits of LR programs in university settings.
Competing Interests: The authors declare no conflicts of interest related to this research.
(Copyright © 2024 Sun-Joung Leigh An and Gyu-Rin Kim.)

Subject terms:

Humans - Universities - Canada - Life Style - Students - Republic of Korea - Quality of Life - Occupational Therapy

Content provider:

MEDLINE

Additional actions:

Canadian English translation and linguistic validation of the 13-MD to measure global health-related quality of life.

Poder TG;Touré M

Academic Journal | Publisher: Taylor & Francis Country of Publication: England NLM ID: 101132257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1744-8379 (Electronic) Linking ISSN: 14737167 NLM ISO Abbreviation: Expert Rev Pharmacoecon Outcomes Res Subsets: MEDLINE Please log in to see more details

Background: The 13-MD is a new instrument designed to measure more globally the variou... more

Canadian English translation and linguistic validation of the 13-MD to measure global health-related quality of life.

Publisher: Taylor & Francis Country of Publication: England NLM ID: 101132257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1744-8379 (Electronic) Linking ISSN: 14737167 NLM ISO Abbreviation: Expert Rev Pharmacoecon Outcomes Res Subsets: MEDLINE

Background: The 13-MD is a new instrument designed to measure more globally the various aspects of the health-related quality of life. Its structure is balanced around physical, mental, and social aspects of health.
Objective: To translate the 13-MD into Canadian English and to ensure that it is conceptually equivalent to the original version in Canadian French.
Methods: Forward and back translations were conducted. A linguistic validation was performed in both Canadian French and Canadian English following an iterative process. This validation was conducted with 15 participants in each group (French and English speakers) using face-to-face cognitive debriefing interviews. This process was done in accordance with academic standards.
Results: The two forward translations resulted in 35.8% of identical sentences (59/165). Back translation indicated that 83.6% of the sentences were identical or almost identical to the original Canadian French version. The review of the back translation led to a few changes in the reconciled forward translation (4/165) and the original version (11/165), while the linguistic validation process led to 24 changes over a possibility of 165 sentences in the Canadian English version and 6 over 165 in the Canadian French version. Most changes provided were minimal and were done to ensure a better understanding of the 13-MD.
Conclusion: The translation and linguistic validation processes were successful in creating a valid 13-MD in Canadian English (13-MD-CE) that is conceptually equivalent to the original version.

Subject terms:

Humans - Canada - Language - Translations - Surveys and Questionnaires - Reproducibility of Results - Quality of Life - Linguistics

Content provider:

MEDLINE

Additional actions:

New generation. Joie de vivre / le Wapikoni mobile présente ; un film de Jeremy Vassiliou ; apprenti-réalisateur, Jeremy Vassiliou.

Streaming video | 2011

Available at Available Online Academic Video Online (USU and USU Eastern) (Call number: Streaming Video)

close

see all

Items

Location	Call No.	Status
Online Academic Video Online (USU and USU Eastern)	Streaming Video	Available

Available online; click to view.

Additional actions:

Health-related quality of life among adolescents and young adults with mood and anxiety concerns.

Kazi AA;Osuch EA;Wammes M;John-Baptiste A

Academic Journal | Publisher: Sage Publications Country of Publication: England NLM ID: 9604507 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1461-7021 (Electronic) Linking ISSN: 13591045 NLM ISO Abbreviation: Clin Child Psychol Psychiatry Subsets: MEDLINE Please log in to see more details

Objectives: To characterize health related quality of life (HRQOL) for Canadians aged ... more

Health-related quality of life among adolescents and young adults with mood and anxiety concerns.

Publisher: Sage Publications Country of Publication: England NLM ID: 9604507 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1461-7021 (Electronic) Linking ISSN: 13591045 NLM ISO Abbreviation: Clin Child Psychol Psychiatry Subsets: MEDLINE

Objectives: To characterize health related quality of life (HRQOL) for Canadians aged 16 to 25 (adolescents and young adults, AYAs) seeking care for mood and anxiety concerns at the First Episode Mood and Anxiety Program, in London, Ontario and to identify factors associated with HRQOL in this population.
Methods: AYAs completed demographic, psychometric, and HRQOL questionnaires. We calculated 36-Item Short-Form Health Survey (SF-36) scores standardized to Canadian and US population norms. We computed Short Form 6 Dimension (SF-6D) utilities conducting multivariable linear regression analysis, adjusting for age, sex, ethnoracial minority status, parental marital/cohabitation status, parental education, the Anxiety Sensitivity Index (ASI-R), Montgomery-Åsberg Depression Rating Scale Self-Report (MADRS-S), Sheehan Disability Scale (SDS), and a modified Inventory of College Students' Recent Life Experiences (ICSRLE-M).
Results: Amongst 182 AYAs who completed questionnaires, mean physical component summary (PCS), mental component summary (MCS) and SF-6D utility scores were low, 43.8 (SD = 16.6), 19.0 (SD = 11.9) and .576 (SD = .074), respectively. Maternal post-secondary education, depression (MADRS-S) and functional impairment (SDS) were significantly associated with SF-6D utility.
Conclusion: This cohort of mental healthcare-seeking AYAs had significantly impaired psychometric and utility-based measures of quality of life, underscoring the importance of timely access to healthcare services for this population.
Competing Interests: Declaration of conflicting interestsThe author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Subject terms:

Humans - Young Adult - Adolescent - Canada - Anxiety Disorders - Surveys and Questionnaires - Quality of Life - Anxiety - North American People

Content provider:

MEDLINE

Additional actions:

Quality of life of the Canadian population using the VR-12: population norms for health utility values, summary component scores and domain scores.

Trenaman L;Guh D;Bansback N;Sawatzky R;Sun H;Cuthbertson L;Whitehurst DGT

Academic Journal | Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE Please log in to see more details

Objectives: To estimate Canadian population norms (health utility values, summary comp... more

Quality of life of the Canadian population using the VR-12: population norms for health utility values, summary component scores and domain scores.

Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE

Objectives: To estimate Canadian population norms (health utility values, summary component scores and domain scores) for the VR-12.
Methods: English and French speaking Canadians aged 18 and older completed an online survey that included sociodemographic questions and standardized health status instruments, including the VR-12. Responses to the VR-12 were summarized as: (i) a health utility value; (ii) mental and physical component summary scores (MCS and PCS, respectively), and (iii) eight domain scores. Norms were calculated for the full sample and by gender, age group, and province/territory (univariate), and for several multivariate stratifications (e.g., age group and gender). Results were summarized using descriptive statistics, including number of respondents, mean and standard deviation (SD), median and percentiles (25th and 75th), and minimum and maximum.
Results: A total of 6761 people who clicked on the survey link completed the survey (83.4% completion rate), of whom 6741 (99.7%) were included in the analysis. The mean health utility score was 0.698 (SD = 0.216). Mean health utility scores tended to be higher in older age groups, ranging from 0.661 (SD = 0.214) in those aged 18-29 to 0.728 (SD = 0.310) in those aged 80+. Average MCS scores were higher in older age groups, while PCS scores were lower. Females consistently reported lower mean health utility values, summary component scores and domain scores compared with males.
Conclusions: This is the first study to present Canadian norms for the VR-12. Health utility norms can serve as a valuable input for Canadian economic models, while summary component and domain norms can help interpret routinely-collected data.
(© 2023. The Author(s).)

Subject terms:

Aged - Female - Humans - Male - Canada - Health Status - Surveys and Questionnaires - Adolescent - Young Adult - Adult - Middle Aged - Aged, 80 and over - North American People - Quality of Life psychology - Virtual Reality

Content provider:

MEDLINE

Additional actions:

Preference-based measures of health-related quality of life in Indigenous people: a systematic review.

Roy LM;Neill A;Swampy K;Auger J;Campbell SM;Chatwood S;Al Sayah F;Johnson J...

Academic Journal | Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE Please log in to see more details

Purpose: In many countries, there are calls to address health inequalities experienced... more

Preference-based measures of health-related quality of life in Indigenous people: a systematic review.

Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE

Purpose: In many countries, there are calls to address health inequalities experienced by Indigenous people. Preference-based measures (PBMs) provide a measurement of health-related quality of life and can support resource allocation decisions. This review aimed to identify, summarize, and appraise the literature reporting the use and performance of PBMs with Indigenous people.
Methods: Eleven major databases were searched from inception to August 31, 2022. Records in English that (1) assessed any measurement property of PBMs, (2) directly elicited health preferences, (3) reported the development or translation of PBMs for Indigenous people, or (4) measured health-related quality of life (HRQL) using PBMs were included. Ethically engaged research with Indigenous people was considered as an element of methodological quality. Data was synthesized descriptively (PROSPERO ID: CRD42020205239).
Results: Of 3139 records identified, 81 were eligible, describing psychometric evaluation (n = 4), preference elicitation (n = 4), development (n = 4), translation (n = 2), and HRQL measurement (n = 71). 31 reported ethically engaged research. Reports originated primarily from Australia (n = 38), New Zealand (n = 20), USA (n = 9) and Canada (n = 6). Nearly all (n = 73) reported indirect, multi-attribute PBMs, the most common of which was the EQ-5D (n = 50).
Conclusion: A large number of recent publications from diverse disciplines report the use of PBMs with Indigenous people, despite little evidence on measurement properties in these populations. Understanding the measurement properties of PBMs with Indigenous people is important to better understand how these measures might, or might not, be used in policy and resource decisions affecting Indigenous people. (Funding: EuroQoL Research Foundation).
(© 2023. The Author(s).)

Subject terms:

Humans - Population Groups - Canada - Australia - Quality of Life psychology - Indigenous Peoples

Content provider:

MEDLINE

Additional actions:

Sustainability and the civil commons : rural communities in the age of globalization / Jennifer Sumner.

Sumner, Jennifer, 1949- author.

Ebook | 2007

Available online; click to view

Additional actions:

Sustainability and the civil commons : rural communities in the age of globalization / Jennifer Sumner.

Sumner, Jennifer, 1949-

Book | 2005

Available at Available Merrill-Cazier Books (2nd Floor South) (Call number: HC 79 .E5 S82 2005)

close

see all

Items

Location	Call No.	Status
Merrill-Cazier Books (2nd Floor South)	HC 79 .E5 S82 2005	Available

Additional actions:

Canada population norms for the EQ-5D-5L.

Yan J;Xie S;Johnson JA;Pullenayegum E;Ohinmaa A;Bryan S;Xie F

Academic Journal | Publisher: Springer-Verlag Country of Publication: Germany NLM ID: 101134867 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1618-7601 (Electronic) Linking ISSN: 16187598 NLM ISO Abbreviation: Eur J Health Econ Subsets: MEDLINE Please log in to see more details

Objective: In Canada, population norms are only available for 2 provinces, Alberta and... more

Canada population norms for the EQ-5D-5L.

Publisher: Springer-Verlag Country of Publication: Germany NLM ID: 101134867 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1618-7601 (Electronic) Linking ISSN: 16187598 NLM ISO Abbreviation: Eur J Health Econ Subsets: MEDLINE

Objective: In Canada, population norms are only available for 2 provinces, Alberta and Quebec. The objective of this study was to derive the population norms for the EQ-5D-5L based on a representative sample of the Canadian general population.
Methods: Data from the Canadian EQ-5D-5L valuation study, a cross-sectional study, were used. A quota sampling method was used to recruit a representative sample of the Canadian general population in terms of age, sex, and education. EQ-5D-5L utilities and EQ VAS were summarized using descriptive statistics and the impact of demographic characteristics on the EQ-5D-5L utilities was evaluated using statistical hypothesis testing and Tobit regression.
Results: 1207 eligible participants were included in the analysis. Pain/discomfort (53.1%) was the most frequently reported domain with any problem, and self-care (7.6%) domain was the least. The mean (standard deviation [SD]) EQ-5D-5L utility was 0.864 (0.121) and the mean (SD) EQ VAS was 82.3 (14.23). The highest mean EQ-5D-5L utility was 0.881 in age group 25-34 while the lowest was 0.839 in age group 55-64. Participants who had full-time employment, were married, a higher annual household income and no chronic health conditions had significantly higher EQ-5D-5L utilities.
Conclusion: This article reports the first Canadian population norms for the EQ-5D-5L and can be used as population references for economic evaluations and clinical research.
(© 2023. The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature.)

Subject terms:

Humans - Canada - Cross-Sectional Studies - Self Care - Surveys and Questionnaires - Health Status - Quality of Life

Content provider:

MEDLINE

Additional actions:

Impact of Systemic Delays for Patient Access to Oncology Drugs on Clinical, Economic, and Quality of Life Outcomes in Canada: A Call to Action.

Sehdev S;Gotfrit J;Elias M;Stein BD

Academic Journal | Publisher: MDPI Country of Publication: Switzerland NLM ID: 9502503 Publication Model: Electronic Cited Medium: Internet ISSN: 1718-7729 (Electronic) Linking ISSN: 11980052 NLM ISO Abbreviation: Curr Oncol Subsets: MEDLINE Please log in to see more details

Canada has one of the most complex and rigorous drug approval and public reimbursement... more

Impact of Systemic Delays for Patient Access to Oncology Drugs on Clinical, Economic, and Quality of Life Outcomes in Canada: A Call to Action.

Publisher: MDPI Country of Publication: Switzerland NLM ID: 9502503 Publication Model: Electronic Cited Medium: Internet ISSN: 1718-7729 (Electronic) Linking ISSN: 11980052 NLM ISO Abbreviation: Curr Oncol Subsets: MEDLINE

Canada has one of the most complex and rigorous drug approval and public reimbursement processes and is, unfortunately, one of the countries with the longest delays in drug access. To assess the overall impact of systemic delays in access to cancer therapy, a targeted literature review (TLR) was performed to identify studies associated with the clinical, economic, and quality of life impacts of delayed access to oncology drugs. Using MEDLINE/PubMed databases and snowballing, four unique records met the eligibility criteria. Results revealed that clinical outcomes were the most impacted by systemic delays in access to oncology drugs (e.g., life years lost, overall survival, and progression-free survival). The four articles retrieved by the TLR specifically illustrated that a substantial number of life years could potentially be saved by increasing systemic efficiency regarding the development, approval, and reimbursement processes of new drugs for advanced malignancies. It is imperative that initiatives are put in place to improve the performance and speed of Canadian drug regulatory and health technology assessment (HTA) processes, especially for new cancer therapeutics. The proposed solutions in this paper include better coordination between HTA and Canadian payers to harmonize coverage decisions, international collaborations, information sharing, and national standards for timeliness in oncology drug access.

Subject terms:

Humans - Canada - Drug Approval - Insurance, Health, Reimbursement - Quality of Life - Neoplasms drug therapy

Content provider:

MEDLINE

Additional actions:

Social adjustment in children diagnosed with sickle cell disease: A retrospective study.

Zwicker HM;Fay-McClymont TB;Hou SHJ;Cho S;McDonald K;Guilcher GMT;Yeates KO...

Academic Journal | Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE Please log in to see more details

Background: Children with sickle cell disease (SCD) are at risk for physical, psycholo... more

Social adjustment in children diagnosed with sickle cell disease: A retrospective study.

Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE

Background: Children with sickle cell disease (SCD) are at risk for physical, psychological, and social adjustment challenges. This study sought to investigate social adjustment and related factors in children living with SCD.
Methods: Data from 32 children (50% male, mean age = 10.32 years, SD = 3.27) were retrospectively collected from a neuropsychology clinic at a tertiary care pediatric hospital. Social adjustment was measured using the Behavior Assessment System for Children (BASC-3) parent-proxy, withdrawal subscale, and the Pediatric Quality of Life Inventory (PedsQL) Generic Module Social Functioning self- and parent-proxy subscales. Other measures captured executive functioning (i.e., Behavior Rating Inventory of Executive Function, Second Edition (BRIEF-2) Parent Form) and non-disease-related associations with social adjustment, including number of years in Canada and family functioning (i.e., PedsQL Family Impact Module).
Results: Sixteen percent of patients reported elevated social adjustment difficulties. Multiple linear regression found better family functioning [B = .48, t = 2.65, p = .016], and higher executive functioning [B = -.43, t = -2.39, p = .028] were related to higher scores on the PedsQL parent-proxy ratings of social adjustment [F(4,18) = 5.88, p = .003]. Male sex [B = .54, t = 3.08, p = .005], and having lived more years in Canada [B = .55, t = 2.81, p = .009], were related to higher PedsQL self-reported social adjustment [F(4,23) = 3.75, p = .017]. The model examining the BASC-3 withdrawal subscale was not statistically significant [F(4,16) = 1.63, p = .22].
Implications: Social adjustment in children diagnosed with SCD warrants future research to understand the influence of executive function, and non-disease-related factors, particularly focusing on sociocultural factors.
(© 2023 The Authors. Pediatric Blood & Cancer published by Wiley Periodicals LLC.)

Subject terms:

Child - Humans - Male - Female - Retrospective Studies - Social Adjustment - Canada - Parents psychology - Surveys and Questionnaires - Quality of Life psychology - Anemia, Sickle Cell psychology

Content provider:

MEDLINE

Additional actions:

Fitness business Canada [electronic resource].

Electronic Journal | 2000 -

Click here for full text

Additional actions:

Adaptation of a psycho-educational group programme to improve coping in dementia caregiving: a feasibility study with mixed-methods.

Pihet S;Clément M;Terrapon E;Kipfer S

Academic Journal | Publisher: BioMed Central Country of Publication: England NLM ID: 100968548 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2318 (Electronic) Linking ISSN: 14712318 NLM ISO Abbreviation: BMC Geriatr Subsets: MEDLINE Please log in to see more details

Background: As the number of people living with dementia rapidly increases worldwide, ... more

Adaptation of a psycho-educational group programme to improve coping in dementia caregiving: a feasibility study with mixed-methods.

Publisher: BioMed Central Country of Publication: England NLM ID: 100968548 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2318 (Electronic) Linking ISSN: 14712318 NLM ISO Abbreviation: BMC Geriatr Subsets: MEDLINE

Background: As the number of people living with dementia rapidly increases worldwide, the support provided by their informal caregivers remains key to the sustainability of most healthcare systems, this voluntary contribution representing 40% of the costs of dementia worldwide. Informal caregiving in dementia, however, is linked to long periods of chronic stress with frequent and serious negative consequences on the health and quality of life of the caregiver. A psycho-educational group intervention focusing on coping with the daily stress of dementia caregiving ("Learning to feel better… to help better"), developed in French-speaking Canada and showing broad effects on quality of life, was selected with the aim of 1) adapting it to a new cultural context (French-speaking Switzerland) based on identified facilitators and barriers, using a participative approach; and 2) conducting a feasibility study to evaluate whether the adapted programme showed similar or improved feasibility and effects compared to the original Canadian programme.
Methods: A mixed-methods concurrent nested design was used to evaluate the feasibility and the effects on five quantitative core outcomes. Additional qualitative data helped document in depth the acceptability and impact of the intervention.
Results: We shortened the programme from 30 to 21 h in total, which resulted in increased accessibility, in terms of facilitated recruitment of participants and inclusion of a broader range of informal caregivers. There were significant reductions in subjective burden (effect size: d = -0.32) and psychological distress (d = -0.48), as well as decreases in the stress reactions of informal caregivers related to the behaviour problems of the persons with dementia (d = -0.57). The qualitative results emphasized the usefulness of providing informal caregivers with structured procedures for efficiently tackling everyday challenges, and of enabling learning through a variety of channels and activities.
Conclusions: Substantial improvements are associated with this 21-h group intervention, organised in 7 sessions of 3 h each, focused on learning more efficient strategies to cope with the daily stress of dementia caregiving. This intervention empowered informal caregivers to master their daily challenges with more confidence, satisfaction and calm.
Trial Registration: ISRCTN13512408 (registration date 17.05.2021, retrospectively registered).
(© 2024. The Author(s).)

Subject terms:

Humans - Feasibility Studies - Canada - Coping Skills - Caregivers psychology - Quality of Life psychology - Dementia psychology

Content provider:

MEDLINE

Additional actions:

Health-related quality of life in the year following road trauma: Longitudinal analysis using piecewise latent curve modeling.

Momenyan S;Chan H;Erdelyi S;Pei LX;Shum LK;Jae L;Taylor J;Staples JA;Brubac...

Academic Journal | Publisher: Elsevier/North-Holland Biomedical Press Country of Publication: Netherlands NLM ID: 7906073 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2517 (Electronic) Linking ISSN: 01650327 NLM ISO Abbreviation: J Affect Disord Subsets: MEDLINE Please log in to see more details

Background: Road trauma (RT) survivors have reduced health-related quality of life (HR... more

Publisher: Elsevier/North-Holland Biomedical Press Country of Publication: Netherlands NLM ID: 7906073 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2517 (Electronic) Linking ISSN: 01650327 NLM ISO Abbreviation: J Affect Disord Subsets: MEDLINE

Background: Road trauma (RT) survivors have reduced health-related quality of life (HRQoL). We identified phases and predictors of HRQoL change following RT injury.
Methods: In a prospective cohort study of 1480 Canadian RT survivors aged 16 to 103 years (July 2018 - March 2020), physical component (PCS) and mental component (MCS) summary scores from the SF-12v2 were measured pre-injury and 2, 4, 6, and 12 months post-injury and their trajectories were analyzed with piecewise latent growth curve modeling. Potential predictors of HRQoL changes included sociodemographic, psychological, medical, and trauma-related factors.
Results: PCS and MCS scores worsened from pre-injury to 2-months (phase 1) and then improved (phase 2), but never regained baseline values. Older age, somatic symptoms and pain catastrophizing were associated with lower preinjury PCS and MCS scores. Psychological distress was associated with lower preinjury MCS scores and higher preinjury PCS scores. Phase 1 PCS scores decreased most in females, participants with fewer pre-injury somatic symptoms and those without expectations for fast recovery. Phase 1 MCS decreases were associated with younger age, female sex, living alone, lower psychological distress, lack of expectation for fast recovery and higher injury pain. In phase 2, MCS improved most in participants not using recreational drugs; PCS improved most in participants with higher education and longer recovery expectations.
Limitations: There may be recall bias with reporting pre-injury HRQoL. Selection bias is possible.
Conclusions: Many factors influence HRQoL following RT. These findings may inform measures to minimize HRQoL reduction following RT and speed up subsequent recovery.
Competing Interests: Declaration of competing interest None
(Copyright © 2024 The Authors. Published by Elsevier B.V. All rights reserved.)

Subject terms:

Humans - Female - Prospective Studies - Canada - Survivors - Quality of Life psychology - Medically Unexplained Symptoms

Content provider:

MEDLINE

Additional actions:

Please log in to see this content from CINAHL Complete

Academic Journal |

Additional actions:

Fitness works! [electronic resource]

Electronic Journal | 1990 - 1992

Click here for full text

Additional actions:

Identifying health-related quality of life concepts to inform the development of the WOUND-Q.

Tsangaris E;van Haren EL;Poulsen L;Squitieri L;Hoogbergen MM;Cross K;Sørens...

Academic Journal | Publisher: MA Healthcare Country of Publication: England NLM ID: 9417080 Publication Model: Print Cited Medium: Internet ISSN: 0969-0700 (Print) Linking ISSN: 09690700 NLM ISO Abbreviation: J Wound Care Please log in to see more details

Objective: The impact of hard-to-heal wounds extends beyond traditional clinical metri... more

Identifying health-related quality of life concepts to inform the development of the WOUND-Q.

Publisher: MA Healthcare Country of Publication: England NLM ID: 9417080 Publication Model: Print Cited Medium: Internet ISSN: 0969-0700 (Print) Linking ISSN: 09690700 NLM ISO Abbreviation: J Wound Care

Objective: The impact of hard-to-heal wounds extends beyond traditional clinical metrics, negatively affecting a patient's health-related quality of life (HRQoL). Yet treatment outcomes are seldom measured from the patient's perspective. The purpose of the present study was to perform in-depth qualitative interviews with patients diagnosed with varying types of hard-to-heal wounds to identify outcomes important to them.
Method: Participants were recruited from wound care clinics in Canada, Denmark, the Netherlands and the US, and were included if they had a hard-to-heal wound (i.e., lasting ≥3 months), were aged ≥18 years, and fluent in English, Dutch or Danish. Qualitative interviews took place between January 2016 and March 2017. An interpretive description qualitative approach guided the data analysis. Interviews were audio-recorded, transcribed and coded line-by-line. Codes were categorised into top-level domains and themes that formed the final conceptual framework.
Results: We performed 60 in-depth interviews with patients with a range of wound types in different anatomic locations that had lasted from three months to 25 years. Participants described outcomes that related to three top-level domains and 13 major themes: wound (characteristics, healing); HRQoL (physical, psychological, social); and treatment (cleaning, compression stocking, debridement, dressing, hyperbaric oxygen, medication, suction device, surgery).
Conclusion: The conceptual framework developed as part of this study represents the outcome domains that mattered the most to the patients with hard-to-heal wounds. Interview quotes were used to generate items that formed the WOUND-Q scales, a patient-reported outcome measure for patients with hard-to-heal wounds.

Subject terms:

Humans - Adolescent - Adult - Canada - Ethnicity - Stockings, Compression - Quality of Life - Data Analysis

Content provider:

MEDLINE

Additional actions:

Do Residential Long-Term Care Policies Support Family Involvement in Residents' Quality of Life in Four Canadian Provinces?

Keefe JM;Taylor D;Irwin P;Hande MJ;Hubley E

Academic Journal | Publisher: Informa Healthcare Country of Publication: England NLM ID: 8914669 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-0821 (Electronic) Linking ISSN: 08959420 NLM ISO Abbreviation: J Aging Soc Policy Please log in to see more details

Family members are essential contributors to the quality of life (QoL) of persons livi... more

Do Residential Long-Term Care Policies Support Family Involvement in Residents' Quality of Life in Four Canadian Provinces?

Publisher: Informa Healthcare Country of Publication: England NLM ID: 8914669 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-0821 (Electronic) Linking ISSN: 08959420 NLM ISO Abbreviation: J Aging Soc Policy

Family members are essential contributors to the quality of life (QoL) of persons living in residential long-term care (RLTC). This paper analyzes how the system enables or inhibits family involvement with residents in RLTC. Our analysis of 21 policies that regulate long-term care in four Canadian Provinces reveal differences in their portrayal of residents' families. Family roles are characterized procedurally (task-oriented) or relationally (interactive). Operational standards linked to licensing of RLTC homes employ more formal terminology, while RLTC program guidelines, use facilitative language to engage families and build relationships. Examples of orientation procedures, care protocols, living at risk, and end-of-life care reveal inter-provincial variations. We argue that there are opportunities to further engage families within the current regulatory framework and improve their continued contributions in the post-pandemic era.

Subject terms:

Humans - Nursing Homes - Canada - Palliative Care - Family - Long-Term Care - Quality of Life

Content provider:

MEDLINE

Additional actions:

Measure what matters: considerations for outcome measurement of care coordination for children with neurodevelopmental disabilities and medical complexity.

Materula D;Currie G;Jia XY;Finlay B;Richard C;Yohemas M;Lachuk G;Estes M;De...

Academic Journal | Publisher: Frontiers Editorial Office Country of Publication: Switzerland NLM ID: 101616579 Publication Model: eCollection Cited Medium: Internet ISSN: 2296-2565 (Electronic) Linking ISSN: 22962565 NLM ISO Abbreviation: Front Public Health Subsets: MEDLINE Please log in to see more details

Introduction: Care Coordination (CC) is a significant intervention to enhance family's... more

Measure what matters: considerations for outcome measurement of care coordination for children with neurodevelopmental disabilities and medical complexity.

Publisher: Frontiers Editorial Office Country of Publication: Switzerland NLM ID: 101616579 Publication Model: eCollection Cited Medium: Internet ISSN: 2296-2565 (Electronic) Linking ISSN: 22962565 NLM ISO Abbreviation: Front Public Health Subsets: MEDLINE

Introduction: Care Coordination (CC) is a significant intervention to enhance family's capacity in caring for children with neurodevelopmental disability and medical complexity (NDD-MC). CC assists with integration of medical and behavioral care and services, partnerships with medical and community-based supports, and access to medical, behavioral, and educational supports and services. Although there is some consensus on the principles that characterize optimal CC for children with NDD-MC, challenges remain in measuring and quantifying the impacts of CC related to these principles. Two key challenges include: (1) identification of measures that capture CC impacts from the medical system, care provider, and family perspectives; and (2) recognition of the important community context outside of a hospital or clinical setting.
Methods: This study used a multilevel model variant of the triangulation mixed methods design to assess the impact of a CC project implemented in Alberta, Canada, on family quality of life, resource use, and care integration at the broader environmental and household levels. At the broader environmental level, we used linked administrative data. At the household level we used quantitative pre-post survey datasets, and aggregate findings from qualitative interviews to measure group-level impacts and an embedded multiple-case design to draw comparisons, capture the nuances of children with NDD-MC and their families, and expand on factors driving the high variability in outcome measures. Three theoretical propositions formed the basis of the analytical strategy for our case study evidence to explore factors affecting the high variability in outcome measures.
Discussion: This study expanded on the factors used to measure the outcomes of CC and adds to our understanding of how CC as an intervention impacts resource use, quality of life, and care integration of children with NDD-MC and their families. Given the heterogeneous nature of this population, evaluation studies that account for the variable and multi-level impacts of CC interventions are critical to inform practice, implementation, and policy of CC for children with NDD-MC.
Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest.
(Copyright © 2023 Materula, Currie, Jia, Finlay, Richard, Yohemas, Lachuk, Estes, Dewan, MacEachern, Gall, Gibbard and Zwicker.)

Subject terms:

Humans - Child - Canada - Consensus - Outcome Assessment, Health Care - Quality of Life - Child Health Services

Content provider:

MEDLINE

Additional actions:

Improving government : experiments with quality of working life systems / edited by Neal Q. Herrick.

Book | 1983

Available at Available Merrill-Cazier Books (2nd Floor South) (Call number: HD 8005.6 .U5 I46 1983)

close

see all

Items

Location	Call No.	Status
Merrill-Cazier Books (2nd Floor South)	HD 8005.6 .U5 I46 1983	Available

Additional actions:

Suitability of the Attitudes to Aging Questionnaire Short Form for Use among Adults in Their 50s: A Cross-Sectional e-Survey Study.

Low G;França AB;Wilson DM;Gutman G;von Humboldt S

Academic Journal | Publisher: MDPI Country of Publication: Switzerland NLM ID: 101238455 Publication Model: Electronic Cited Medium: Internet ISSN: 1660-4601 (Electronic) Linking ISSN: 16604601 NLM ISO Abbreviation: Int J Environ Res Public Health Subsets: MEDLINE Please log in to see more details

This cross-sectional e-survey study examines the suitability (reliability and validity... more

Suitability of the Attitudes to Aging Questionnaire Short Form for Use among Adults in Their 50s: A Cross-Sectional e-Survey Study.

Publisher: MDPI Country of Publication: Switzerland NLM ID: 101238455 Publication Model: Electronic Cited Medium: Internet ISSN: 1660-4601 (Electronic) Linking ISSN: 16604601 NLM ISO Abbreviation: Int J Environ Res Public Health Subsets: MEDLINE

This cross-sectional e-survey study examines the suitability (reliability and validity) of the 12-item Attitudes to Aging Questionnaire Short Form (AAQ-SF) for use among adults in their 50s. The AAQ-SF instrument was originally designed to capture subjective perceptions of physical change, psychosocial loss, and psychological growth by asking people aged 60 and beyond how they feel about growing older. Our sample comprised 517 people residing in three Canadian provinces. Respondents completed the Attitudes to Aging Questionnaire Short Form, the Rosenberg Self-Esteem Scale, and a short sociodemographic profile. Our findings replicate the original AAQ-SF structure for physical change, psychosocial loss, and psychological growth, with a promising internal consistency range for the third subscale. In our sample, psychological growth is best represented as 'Self' and 'Generativity', with a particularly greater capacity to explain variations in scores for item 18 and item 21. Physical change and psychosocial loss scores strongly differed based on perceived health and chronic illness presence. Psychosocial loss and psychological growth were moderately correlated with two aspects of self-esteem. We relate these patterns of findings within the context of prevailing growth and development theory and their perceived implications within the context of COVID-19 and post-pandemic life.

Subject terms:

Humans - Canada - Cross-Sectional Studies - Psychometrics - Reproducibility of Results - Surveys and Questionnaires - Middle Aged - Aging psychology - Quality of Life psychology

Content provider:

MEDLINE

Additional actions:

Prevalence and determinants of multimorbidity in the Canadian population.

Xiao X;Beach J;Senthilselvan A

Academic Journal | Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE Please log in to see more details

Multimorbidity, which is defined as having at least two or more chronic diseases concu... more

Prevalence and determinants of multimorbidity in the Canadian population.

Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE

Multimorbidity, which is defined as having at least two or more chronic diseases concurrently, has been a rising public health issue in recent years in Canada and worldwide. The increasing prevalence of multimorbidity has posed a burden on the current health care system and quality of life for the Canadian population. There is a lack of up-to-date research on determinants of multimorbidity in the Canadian population, which is necessary to better understand and prevent multimorbidity. This study aims to determine the prevalence and risk factors of multimorbidity in the middle-aged and older Canadian adult population. Multivariable logistic regression analyses incorporating survey weights and biologically plausible interactions were conducted to examine the determinants of multimorbidity using data from the 2017/2018 Canadian Community Health Survey (CCHS). Of the 113,290 CCHS participants, 82,508 subjects who were aged 35 years and above were included in the study. The prevalence of multimorbidity was 22.20% (95% CI: 21.74%, 22.67%) and was greater for females. Multimorbidity was more likely in subjects who were obese, abstaining from alcohol, inactive, had a lower education level, widowed, divorced, or separated and was less likely among subjects living in Quebec. The protective effect of household income on multimorbidity decreased with age. Current smokers who reported extreme stress were more likely to have multimorbidity. Multimorbidity is associated with various determinants that need to be considered in chronic disease control and prevention. These results suggest that future research should focus not only on these determinants but also on the relationships between them. A future longitudinal study is required to provide causal evidence for the study findings.
Competing Interests: The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
(Copyright: © 2024 Xiao et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)

Subject terms:

Adult - Middle Aged - Female - Humans - Aged - Prevalence - Canada epidemiology - Chronic Disease - Multimorbidity - Quality of Life

Content provider:

MEDLINE

Additional actions:

Exploring key components and factors that influence the use of clinical decision- support tools for prescribing to older patients with kidney disease: the perspective of healthcare providers.

Alsalemi N;Sadowski CA;Kilpatrick K;Elftouh N;Houle S;Lafrance JP

Academic Journal | Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE Please log in to see more details

Background: Clinical decision-support (CDS) tools are systems that provide healthcare ... more

Exploring key components and factors that influence the use of clinical decision- support tools for prescribing to older patients with kidney disease: the perspective of healthcare providers.

Publisher: BioMed Central Country of Publication: England NLM ID: 101088677 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-6963 (Electronic) Linking ISSN: 14726963 NLM ISO Abbreviation: BMC Health Serv Res Subsets: MEDLINE

Background: Clinical decision-support (CDS) tools are systems that provide healthcare providers (HCPs) with recommendations based on knowledge and patient-specific factors to facilitate informed decisions.
Objectives: To identify the key components of a CDS tool that are most important to HCPs in caring for older adults with kidney disease, and to understand the facilitators and barriers toward using CDS tools in daily clinical practice.
Methods: Design: A cross-sectional survey of Canadian HCPs was undertaken.
Data Collection: Participants affiliated with a provincial college, nephrology organization, or advocacy body were contacted. The survey was conducted between August and October 2021.
Instrument: A 59-item questionnaire was developed and divided into five main domains/themes. Analysis was done descriptively.
Results: Sixty-three participants completed the questionnaire. Physicians (60%) and pharmacists (22%) comprised the majority of the participants. Most of the participants were specialized in nephrology (65%). The most important components in a CDS tool for prescribing to older patients with kidney disease were the safety and efficacy of the medication (89%), the goal of therapy (89%), and patient's quality of life (87%). 90% were willing to use CDS tools and 57% were already using some CDS tools for prescribing. The majority of the participants selected the validation of CDS tools (95%), accompanying the recommendations by the supporting evidence (84%), and the affiliation of the tools with known organizations (84%), as factors that facilitate the use of CDS tools.
Conclusion: CDS tools are being used and are accepted by HCPs and have value in their assistance in engaging patients in making well-informed decisions.
(© 2024. The Author(s).)

Subject terms:

Humans - Aged - Cross-Sectional Studies - Canada - Health Personnel - Quality of Life - Kidney Diseases

Content provider:

MEDLINE